Jonah Hill, Henry Winkler & More Team Up To Raise Awareness Around a Rare Syndrome

Curated via Twitter from W Magazine’s twitter account….

Hill decided to step up and take action upon learning of—and seeing the immense, far-ranging challenges of—a CCHS diagnosis of his best friends Adam and Blair Fox’s newborn son, Teddy. “When it all happened, it was very, very scary.

Hill also notes that, in addition to the physical difficulty of living with CCHS, there are immense logistical and lifestyle hurdles that come with it. “There is a lot of stuff that you don’t think about until it’s right in front of you.

Jonah Hill, Henry Winkler and many more have joined forces to raise awareness around a little-known condition: Congenital central hypoventilation syndrome.

Link to original article….

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